The Midlothian community has rallied around a ten-year-old girl who struggles to communicate and has breathing and mobility problems.
In 2008, Sophie Spence from Whitehill was diagnosed with Rett Syndrome, a condition that affects around 2500 girls in the UK and can also cause breathing, eating and sleeping difficulties and seizures.
Although it is a genetic disorder, less than one per cent of recorded cases is inherited or passed from one generation to the next – most are spontaneous and occur randomly.
Now a song, sung by former Lasswade High pupil Jillian Neil, and dedicated to all that live with the challenge of Rett Syndrome, has been released.
Read full story in this week’s Advertiser. Out now.