Two DJs are holding a sold-out night at Easthouses Miners Club at the end of the month to raise money for a 10-year-old girl with Rett Syndrome.
Billy Dempsey(42) from Bonnyrigg, and Allan ‘Minty’ Young (36) from Gorebridge, are hoping to raise as much money as they can by holding a 90s dance night on October 31 for a Rett Syndrome charity, in the name of Saltersgate pupil Sophie Spence who suffers from the disease.
Her mum, Jill Spence (39), said: “So many people have done so many fabulous things for Sophie in the community and this is just a mind blowing thing. It’s pretty spectacular for us.
“Billy and I both have daughters the same age and it’s through his wife he got in contact about the fundraiser.
“He heard about Sophie’s condition. So having children himself it kind of struck a chord with him.
“I’m just overwhelmed by the support. The tickets went within a couple of hours. As soon as Bill announced it they went like hotcakes. I think we could have sold out two or three times over.
“The support has been phenomenal really. I’m really looking forward to it. There will be a lot of family and friends there.
“If it wasn’t for the likes of Billy doing this we wouldn’t be in a position we are at today. At where Rett Syndrome is such a hot topic just now.”
Jill is confident that a cure for Rett Syndrome will come.
She said: “Sophie was born like any other child, perfectly healthy. Then it came out of the blue at the age of three.
“I have got four children in all. And we try to keep a sense of normality in the family. But because of Rett Syndrome we are limited in what we can do and can’t do.
“I can’t wait to get her communicating and learning.
“I’m a great believer that there will be a full reversal in Sophie’s lifetime.
“All the money raised will go towards Reverse Rett, a charity set up by two parents. The money goes to research into Rett. They have now reversed this condition in mice.
“To me within Sophie’s lifetime there will be a cure found. I’m pretty positive and I think I have got to be positive. It’s what keeps me going and gives me hope.
“And to me, raising awareness is as important as the fundraising.
“Within Midlothian there are three girls that have Rett.
“Before Sophie got it I hadn’t heard of Rett Syndrome. But now people are talking about it more, which is great.”
Bill Dempsey, of City Discos, has been taken aback by the demand for his charity night later this month.
He said: “It’s going to be a great night. We probably could have sold double the tickets.
“We have got a list of people wanting to go that couldn’t get a ticket. It’s absolutely crazy.”
To donate, go to www.reverserett.org.uk